Friday, 28 July 2017 14:32

How to understand the absurdity of Lyme Disease

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Many people with persistent Lyme symptoms try reason and information to explain the bizarre politics, policies, misdiagnose and mistreatment of this controversial disease to their friends and family. But what if the situation is so absurd that it defies logic? Could satire do the trick better? An attempt.
Thursday, 27 July 2017 14:52

DON’T PANIC legenda

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This legenda may be useful or needed to understand the parallel between the car burning article and the absurd thinking surrounding Lyme Disease.
Monday, 17 July 2017 15:06

Is Lyme a rare disease or rather an epidemic?

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Every year 25,000 Dutchmen get infected with Lyme Disease or Lyme Borreliose, as estimated by the information office (RIVM) of the Dutch Ministry of Health. The media copies these numbers often in broadcasts and articles. But how accurate are these numbers? This article argues why the actual number of infections is much higher. So much higher that Lyme can rightly be called an epidemic instead of a 'rare disease'.
Tuesday, 27 June 2017 08:47

Helping who?

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The WHO, the World Health Organization, has recently published a short video about people-centred care. As a Lyme patient you will find the idea appealing. In this blog you will find out how to help the WHO reach its goals and create a sense of urgency in its member states. Including your own country. 
In the same week the CDC issued its already infamous ‘warning’ about the risks of longterm Lyme treatment, my friend Carla had both her legs amputated. 
Saturday, 27 May 2017 10:21

Canaries in the coal mine

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In recent years, there has been an increasing attention in the media for Lyme disease, which makes more people aware of the fact that there is something very strange and scary going on. Would it be possible however that this disease also has something beautiful to offer, besides all the misery it causes?

Thursday, 06 April 2017 10:23

The difference between Hell and Hello

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The fact that life can be hell is no news to the millions of people worldwide, who are suffering from Lyme Disease, its co-infections or its many, many misdiagnoses such as Alzheimer's disease , Chronic Fatigue Syndrome, fibromyalgia, multiple sclerosis or arthritis. These people desperately want to get recognition for the disease. Why do they and what would it take to achieve that? 

Wednesday, 22 March 2017 14:38

What is the pain of Lyme patients?

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Many people don’t understand why I made Lyme my business, as I am not offering a medical solution for it. Why would I spend years of my life educating the public about it and working to connect professionals from different backgrounds to create impact? What makes Lyme so different from any other health issue? Why does the social-emotional side of Lyme seem to hurt even deeper or his a larger impact than the physical side of it?

Saturday, 04 March 2017 20:09

Fake news or research misconduct?

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Millions of dollars of NIH grants have been supporting unverifiable opinions and screeds that attack those concerned and affected by complicated and persistent cases of Lyme disease. The director of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes and founder of the Global Network on Institutional Discrimination recently wrote a letter to the U.S. Department of Health and Human Services about this issue. 

Recently Dutch national television highlighted how at least fifty parents of children with Lyme were accused of child abuse by the Child Protection Services during the last two years.

Struck by a duck? Burned because your water skis caught on fire? Have a bizarre personal appearance? Fortunately, the World Health Organization has assigned over 68,000 diagnostic codes to cover these and thousands of other conditions. However, while getting struck by a duck or a spacecraft collision gets you care, Lyme Disease does not. 
Thursday, 02 February 2017 17:16

From signpost to workshop

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Exactly a year ago, my friend Carla got a notification to report on her progress on job applications. She is in an electrical wheelchair and had one arm amputated. Regardless, she had to visit the office of the UWV, the Dutch institution which deals with disability status and payments. “Apply for a job!? As what? As a sign post for the Dutch Rail?”, I asked, when she told me somewhat flabbergasted. At least that made her smile again. 

Tuesday, 24 January 2017 23:26

Why are children with Lyme taken away from their parents?

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In the prior post about the events on Friday the thirteenth, when an ill girl with Lyme was forcibly taken away from her parents, I promised to try and explain what seems to happen in situations like this. Based on what grounds do Child Protection Services interfere with a family life, which was under strain already?

Monday, 16 January 2017 11:15

Knock, knock, who's there?

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Last Friday, on Friday the thirteenth, six policemen and three government officials took an ill girl away from her parents. Her parent lost custody over their fifteen year old daughter, who suffers from Lyme Disease. 

Friday, 13 January 2017 15:33

Can the government force caretakers to work for free?

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A Dutch court just ruled that a local goverment could not stop paying the daughter of an elderly woman, for cleaning her house. Two hours a week. 

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