In response to the broadcasting of the documentary 'Cheating or Borreliose' in Denmark and recently also in the Netherlands, a report was submitted to TV2, the government-owned television institution in Denmark that made and sold the documentary. In this second article you can read a shorter and simplified version of it, so everyone can understand its essence and can see why the documentary is indeed contributing to the violation of human rights of Lyme patients. 

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The documentary 'Cheating or Borreliose' was broadcasted in 2016 in Denmark and recently also in the Netherlands with the name 'Undercover in the German Lyme clinics'. This lead to a report being submitted to TV2, the government-owned television institution in Denmark, which made and sold the documentary. It is an example of how the official recording of human rights abuses by the United Nations can be used to protect Lyme patients.

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Wednesday, 11 October 2017 20:04

The lost link between ALS and Lyme disease

Knowledge about emergent diseases normally increases over time. Lyme Disease seems to be an exception to this rule. Claims that governments and scientists made around 1990, seem to have been forgotten. This article explores the lost link between ALS and Lyme. ALS is also known as Motor Neurone Disorder (MND) or as Lou Gehrig's Disease, after the famous Yankee baseball player who died from it in the 1940's. It is still claimed there is no known cause nor cure for it. 
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Many people with persistent Lyme symptoms try reason and information to explain the bizarre politics, policies, misdiagnose and mistreatment of this controversial disease to their friends and family. But what if the situation is so absurd that it defies logic? Could satire do the trick better? An attempt.
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Every year 25,000 Dutchmen get infected with Lyme Disease or Lyme Borreliose, as estimated by the information office (RIVM) of the Dutch Ministry of Health. The media copies these numbers often in broadcasts and articles. But how accurate are these numbers? This article argues why the actual number of infections is much higher. So much higher that Lyme can rightly be called an epidemic instead of a 'rare disease'.
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In the same week the CDC issued its already infamous ‘warning’ about the risks of longterm Lyme treatment, my friend Carla had both her legs amputated. 
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Wednesday, 22 March 2017 14:38

What is the pain of Lyme patients?

Many people don’t understand why I made Lyme my business, as I am not offering a medical solution for it. Why would I spend years of my life educating the public about it and working to connect professionals from different backgrounds to create impact? What makes Lyme so different from any other health issue? Why does the social-emotional side of Lyme seem to hurt even deeper or his a larger impact than the physical side of it?

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Struck by a duck? Burned because your water skis caught on fire? Have a bizarre personal appearance? Fortunately, the World Health Organization has assigned over 68,000 diagnostic codes to cover these and thousands of other conditions. However, while getting struck by a duck or a spacecraft collision gets you care, Lyme Disease does not. 
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Recently Dutch national television highlighted how at least fifty parents of children with Lyme were accused of child abuse by the Child Protection Services during the last two years.

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In the prior post about the events on Friday the thirteenth, when an ill girl with Lyme was forcibly taken away from her parents, I promised to try and explain what seems to happen in situations like this. Based on what grounds do Child Protection Services interfere with a family life, which was under strain already?

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