Wednesday, 11 October 2017 20:04

The lost link between ALS and Lyme disease

Knowledge about emergent diseases normally increases over time. Lyme Disease seems to be an exception to this rule. Claims that governments and scientists made around 1990, seem to have been forgotten. This article explores the lost link between ALS and Lyme. ALS is also known as Motor Neurone Disorder (MND) or as Lou Gehrig's Disease, after the famous Yankee baseball player who died from it in the 1940's. It is still claimed there is no known cause nor cure for it. 
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Many people with persistent Lyme symptoms try reason and information to explain the bizarre politics, policies, misdiagnose and mistreatment of this controversial disease to their friends and family. But what if the situation is so absurd that it defies logic? Could satire do the trick better? An attempt.
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Every year 25,000 Dutchmen get infected with Lyme Disease or Lyme Borreliose, as estimated by the information office (RIVM) of the Dutch Ministry of Health. The media copies these numbers often in broadcasts and articles. But how accurate are these numbers? This article argues why the actual number of infections is much higher. So much higher that Lyme can rightly be called an epidemic instead of a 'rare disease'.
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In the same week the CDC issued its already infamous ‘warning’ about the risks of longterm Lyme treatment, my friend Carla had both her legs amputated. 
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Wednesday, 22 March 2017 14:38

What is the pain of Lyme patients?

Many people don’t understand why I made Lyme my business, as I am not offering a medical solution for it. Why would I spend years of my life educating the public about it and working to connect professionals from different backgrounds to create impact? What makes Lyme so different from any other health issue? Why does the social-emotional side of Lyme seem to hurt even deeper or his a larger impact than the physical side of it?

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Struck by a duck? Burned because your water skis caught on fire? Have a bizarre personal appearance? Fortunately, the World Health Organization has assigned over 68,000 diagnostic codes to cover these and thousands of other conditions. However, while getting struck by a duck or a spacecraft collision gets you care, Lyme Disease does not. 
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Recently Dutch national television highlighted how at least fifty parents of children with Lyme were accused of child abuse by the Child Protection Services during the last two years.

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In the prior post about the events on Friday the thirteenth, when an ill girl with Lyme was forcibly taken away from her parents, I promised to try and explain what seems to happen in situations like this. Based on what grounds do Child Protection Services interfere with a family life, which was under strain already?

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Monday, 16 January 2017 11:15

Knock, knock, who's there?

Last Friday, on Friday the thirteenth, six policemen and three government officials took an ill girl away from her parents. Her parent lost custody over their fifteen year old daughter, who suffers from Lyme Disease. 

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Tuesday, 11 August 2015 08:08

Why would I want to read a book about Lyme?

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Why indeed would someone want to read anything about Lyme? If you are a caretaker or friend close to someone with Lyme, it is clear why: because you try so hard to understand what your loved one is going through and understand why the system isn't helping them. Then my book Shifting the Lyme Paradigm is directly meant for you. Yes, for you and not for your sick loved ones. But why would you want to read a book about Lyme, if the topic does not seem relevant to you? There is so much else that demands your attention, isn't there? 

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