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Knock, knock, who’s there?

Written by Huib, published Monday January 16th, 2017

Last Friday, on Friday the thirteenth, six policemen and three government officials took an ill girl away from her parents. Her parent lost custody over their fifteen year old daughter, who suffers from Lyme Disease. The family’s lawyer, Richard Korver, whom I recently interviewed for the On Lyme Foundation blog, confirmed me what happened. I cannot to write too much on this current case yet, because too much publicity may decrease his changes of winning custody back for the parents.

So I will make a series of blogs during the coming months, to delve into the question what is happening and how. The question ‘why is this happening’ depends on interpretation so much, I’ll stay out of it. What I will look into is the current way that Child Protective Services are financed and measured, because this can be regarded as predictive of their ‘output’.

While many people in European countries believe or hope that this only happens in the USA, I’ve heard this same things from many parents in different countries all over the world. A Dutch interest group for parents with chronically ill children is now receiving hundreds of complaints from parents about how Dutch Child Protection Services mistreated them and their children in the past years. Over half these cases is about Lyme disease. Some led to a loss of custody.

Its chairman told me that she is very alarmed by how many parents of children with Lyme have filed a complaint with them. She expects this to be the top of a much larger iceberg.

Already in 2013, when I did the research for ‘Shifting the Lyme Paradigm’, parents from many different countries told me this same story. In that book I told the almost incredible story of Maryanne Godboldo.

This is what I wrote in the book, to alert parents of children with Lyme to the possibility it could happen to them as well:

“Kids are being taken by the state, because parents try to seek second opinions when doctors falsely tell the parents that the kids’ symptoms are psychiatric. This is happening in the Justina Pelletier case, and Boston Children’s Hospital has done this to dozens of other families. The medical system is fighting back against these “difficult parents” with the rule of law.”

In the Netherlands I notice that parents believe that this is a national issue. I don’t see the grass being greener anywhere. Similar stories are being told in France, Germany, the UK, Norway, Canada and so on.

To be continued

Huib Kraaijeveld

Author of “Shifting the Lyme Paradigm” and initiator of the On Lyme Foundation

drs. Huib Kraaijeveld

In: Blog Bureaucracy Youth Care Lyme Human rights Social

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