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Lyme and the SEP syndrome 

Written by Huib, published Saturday October 22nd, 2016

The SEP syndrome is a widespread – although not commonly known – psychological mechanism. There is however no subject in which it is so epidemic as in the topic of Lyme Disease. How is it possible that all involved and even uninvolved parties seem to believe it is Somebody Else’s Problem? A guest blog post, originally written for the Caudwell LymeCo Charity website, meant to be thought provoking.


‘‘This is a story about four people: Everybody, Somebody, Anybody, and Nobody. There was an important job to be done and Everybody was asked to do it. Everybody was sure Somebody would do it. Anybody could have done it, but Nobody did it. Somebody got angry about that because it was Everybody’s job. Everybody thought Anybody could do it, but Nobody realised that Everybody wouldn’t do it. It ended up that Everybody blamed Somebody, while Nobody did what Anybody could have done.’’ 

Lyme Disease is a SEP to your GP. He has seen in his medical textbook, journals and Guidelines that it always shows up in the knee, is always caused by a tick bite followed by a clear red EM ring and will be found with the tests he is allowed to use. He does not know the science showing his tests are invalid, no red ring showing up in most cases, that Lyme can be transmitted by mosquitoes, pregnancy, sex, blood donation and organ transplants as well. He does not know it can show up in 350 plus disguises. He does not know the Borrelia is related to the causative agent of Syphilis. If his information is incorrect or incomplete, Someone Else should know about it. A specialist preferably.

The specialist does not know all the above and is only trained to look at clusters of symptoms inside his specialisation. Since the symptoms of Lyme vary, it is by definition a SEP to him. Another Specialist’s Problem. Confronted with a multi-system stealth disease like Lyme “specialisation” equals blindness of the whole system.
Apart from that, the word MUS (Medically Unexplained Symptoms) has now conveniently been invented and the highly disputed Diagnostic Symptoms Manual version Five (DSM V) now includes chronic Lyme as a ‘Somatic Disease’ after two weeks of treatment. So now it’s suddenly a SEP for a psychiatrist.

For psychiatrists, Lyme is also a SEP. Pharma should deliver the necessary pills to keep their patients patient. Besides, they have never heard dr. Paul Fink, former President of  the American Psychiatric Association, state in 2002 that “Lyme Disease can mimic every psychiatric disorder in the Diagnostic Symptoms Manual IV. This includes attention deficit disorder (ADD), antisocial personality, panic attacks, anorexia nervosa, autism and Asperger’s syndrome. It might be prudent in any person suddenly found to have psychiatric symptoms to exclude Lyme disease first.”

For governments, Lyme is a SEP too. The international Guidelines clearly state what is causing Lyme, how to test for it and how to treat it. So as long as they cannot win votes with the topic, it’s a SEP as well. Their Health Department should deal with it.

To this national Health Department, Lyme is a SEP as well. Anyhow all legislation and funding is regulated above national boundaries. Regardless, Someone Else should look at it. A scientist preferably.

To scientists, Lyme is a SEP, because they will not get the funding to create a valid test. Or if they do, they seem to lose their jobs lightning quick.

To employers, Lyme is a SEP. They’ll go bankrupt if they need to keep paying costs of employees who cannot work. So it’s the problem of the disability payment Department of their government.

To this department, Lyme is a SEP as well. They basically claim that ‘Lyme is no valid reason not to work’ and declare ill people ‘fit to work’. Killing thousands of them in the process.

To health insurance companies, Lyme is a SEP, after two weeks. They use the international Guidelines, which they funded, as a justification to stop paying. While completely ignoring other guidelines, which patients actually do support.

Lyme Disease is a SEP even to patients with many diseases that might possibly be Lyme in disguise. They simply believe in the diagnosis they have received, such as Alzheimer, Parkinson, ME, CFS, MS, Fibromyalgia, ALS, ADHD and so on. Only some know that pathological research has found that Lyme was the cause of all the symptoms in a shocking 90% of the cases.

Lyme Disease is a SEP even to the Lyme patients. They are ill and Someone Else has to fix them. A doctor preferably. And if they cannot, an alternative therapist. If they are not bankrupt by that time.

To government officials and schools, children with Lyme are a SEP. They let Child Protective Services accuse parents of ‘child abuse’ and try to take custody away from them.

To judges Lyme is a SEP. They rely on experts, who will state that parents suffer from ‘Münchhausen by Proxy’; sometimes without even seeing them. So they lose custody over their ill children.

To the general public Lyme disease is of course a SEP. They think that they don’t have it and Someone Else should make sure it will not become their Problem. So they have become a market for a tick vaccine; oblivious to the fact that prior vaccines seem to have infected people. Or to the fact that ticks are only one of the many vectors of infection.

To Pharma, Lyme is a SEP. This is basically the reason for this entire market to exist. A profit driven industry may not be interested in healthy clients. They may want as many Somebody Elses as possible to keep having Problems, in order to continuously create shareholders’ value.

Would it be possible to turn Lyme into an Everybody’s Problem? Imagine people would only pay, until they get sick. Wouldn’t that actually be an incentive to keep or get people healthy?

Shifting the Lyme Paradigm; a Caretakers’ Guide on a Heroes Journey

Lyme Disease is – however – not a SEP for loving parents, partners, caretakers and friends. If they dare to stay connected as travel companion on the Heroes Journey of their ill loved ones. That is why I wrote my book ‘Shifting the Lyme Paradigm’ especially for caretakers. A book about a parasitical disease in a parasitical system, showing its readers how to be a travel companion on this Heroes Journey. Social change always starts from below and love is always the key ingredient.

“Huib Kraaijeveld has thought deeply about Lyme disease.  His starting point is detailed study of several individual cases over time; what happened to them; the responses of physicians and societal institutions to the connundrums they and their illnesses posed; how these patients coped or failed to cope with their altered health status and ability to function in the world; and how caring friends can intervene to provide succor and alliance ‘against the odds’ of a potentially serious and very complex illness that is still poorly understood by mankind.  

Kraaijeveld proposes a number of unique strategies based on his life experience and background that fall outside of the strictly allopathic medical model to facilitate recovery physically, emotionally and spiritually and to endeavor to restore wholeness following the profound impact of an illness that, quite literally, can go to the marrow.  

An epilogue by emeritus Professor Emeritus Cees J. Hamelink gets to the core of the Lyme controversy: the uses and abuses of power and that empowerment of individual patients and of persons with Lyme disease as a ‘class’ holds the key to compelling change from an unacceptable status quo – in short, Shifting the Lyme Paradigm

Kenneth B. Liegner, M.D., Author of In the Crucible of Chronic Lyme Disease and Board member of the International Lyme & Associated Diseases Society 

You can get Shifting the Lyme Paradigm as a Priceless e-book here or first get an impression in the free introductory booklet Lyme for Laymen. ‘Priceless’ means you are asked to pay for the hosting and are called upon your honour to donate for it, if you found it valuable and have any money left after your adventures in Lyme Lands.

drs. Huib Kraaijeveld

In: Blog Inspiration Lyme Nonsense Social

"This book perfectly describes the plight of millions of patients, who suffer from chronic Lyme Disease in many countries all over the world."
Prof. Christian Perronne, France

"This book is a gift of truth and passion to humanity."
Mia Morales, Lyme patient, USA

"I received the book exactly on the day that I had decided to end my life. Huh?! Yep. I am 35 years old years and have been ill for 19 years. Now I know why: Lyme. Everyone should read this book!"
Miranda, the Netherlands

"This book offers a new practical, human centered way of dealing with health information. It is also ringing a bell for the new time how to work together towards health and thriving."
Kim Schimmler, MD, Germany

"This pioneer's work made it perfectly clear that, when "i" becomes "we", even illness becomes wellness."
Frans Vermeulen, journalist, the Netherlands

"In his crucial work on Lyme disease, dedicated social researcher Huib Kraaijeveld does not pretend to have all the answers, but guides us towards asking the upsetting and essential questions."
Prof. Cees Hamelink, professor Communication Sciences & Human Rights, the Netherlands

"This book reads like a thriller! It touched me deeply and I am sure it will change the course of history."
Linda Graanoogst, journalist, the Netherlands

"Well, I am wiping my eyes and blowing my nose, while tears stream down my face. I guess that is a good sign. You hit the nail on the head claiming that Lyme survivors need 'understanding'. I would like my own partner to read this book."
Anodea Judith, PhD & author, USA

"What an awakening perspective! Huib has successfully set a quantum leap for understanding and managing Lyme disease by common people."
John Wong, bestselling author, Singapore

"A true and unpretentious caretakers' guide to understand Lyme. This book will help you to completely understand what your friend is going through; regardless of the symptoms they have. I wish it had been written ten years ago, because it can actually save lives!"
Cheryl Versalle, Lyme patient, USA

"This book actually speaks to people beyond its target audience (caretakers of people with Lyme Disease): people like me who are not travel companions, but to whom it is not hard at all to have or develop understanding and compassion. This makes the reach of this book bigger, much bigger if you’d ask me. I am amazed a book can do all of this!"
Saskia Steur, business blogger, the Netherlands

"This book reads like an exciting novel, were it not that it concerns a deadly serious issue. It calls to contribute and take care of each other and our world. Read, weep, feel and act!"
Manfred van Doorn, leadership expert, the Netherlands

"A creative and very intelligent vision to dive even deeper into the world of Lyme, to look at yourself, other people, but also the entire world around you."
Friend of someone with Lyme

"The book indicates that Lyme disease can be a sexually transmitted disease. This will cause a tidal wave of awareness all over the world. Like the child in the old fairy tale The Emperor’s New Clothes, who exclaimed: 'But the emperor is wearing no clothes!'"
Ola Aniel Petterson, STD campaign leader, Sweden

"What a brilliant sociological work! I am sure it will have much impact."
Professor Neuropathy, Germany

"This book is a big eye opener. Both for friends of people with Lyme disease as well as for people with Lyme. Or for any other health issues, for that matter."
Martin Möhrke, medical research leader, Europe

"I cannot read any other book for more than two minutes now, in this hell called Lyme. Yet yours I cannot stop reading! I should have put it away hours ago to clean the house. But I simply cannot stop."
Ineke, wife of a husband with Lyme, the Netherlands

"This book is a delight to read. It offers soft candlelight and warm campfire camaraderie on an often dark and lonely journey."
Laura Bruno, medical intuitive Lyme expert, USA

"A very honest and yet witty way of helping those with Lyme disease. This book is full of ideas on how to help your friend with Lyme, as a travel companion on this crazy journey called 'Lyme'."
Lisa Hilton, Lyme advocate, USA

"Both the personal experiences as well as the author’s sharp mind turn this into an incredibly inspiring book that raises the consciousness of its readers."
Kara, ex Crohn disease patient, the Netherlands

"Tempting, informative and eminently readable! Shifting the Lyme Paradigm is an absolute eye-opener for those who are not aware of what the journey of Lyme disease entails."
Terri Mackinnon-Cross, CEO WorldLymeDay.com, Canada

"This book gave us the recognition and acknowledgment, which were like a band-aid on an open wound."
Sara, Lyme patient, Belgium

"Very insistently written based on intensive, almost existential, personal experiences, this book also gives a clear overview of all relevant information for both patients and caretakers."
Jan Eendebak, former chairman Lyme Foundation STZ, the Netherlands

"A relief to read, written by an expert who shares his dedication to his own path with us, and brilliantly written."
Muna, mother of a daughter with chronic Lyme, the Netherlands

"Playful, frightening, informative and encouraging."
Merel, kinesiologist, the Netherlands

"This book made me realize that there is too little known behind the phenomenon Lyme. In a challenging manner the author provides understanding of Lyme disease and suggestions for tackling this disease. I have 'prescribed' this book to many of my patients and mostly astonishment was soon followed by recognition. An absolute must for anyone with (still) unexplained symptoms or the people close around them."
Duco Kanij, osteopath, the Netherlands

"This book guides you through the labyrinth of Lyme swiftly, while it took us YEARS to even get this far."
Eugenie van der Linden, ex-Lyme patient and therapist, the Netherlands

"This book is an absolute 'must read' for everyone! For patients, for family and friends, and for doctors who can finally learn that Lyme is more than what is written in their textbooks and that they should not be able to dismiss "unexplained" complaints as psychological too quickly!"
Anne Fierlafijn, MD, Belgium

"Shifting the Paradigm of Lyme is not like any other book on Lyme that I have read. It appeals to a higher consciousness, and is analytical in an introspective way that is pleasant to read. This book is a friendly and warm reminder that no Lyme patient is ever alone."
Thomas Grier, biologist, USA

"This book show how caring friends can intervene to provide succor and alliance ‘against the odds’ of a potentially serious and very complex illness that is still poorly understood by mankind."
Kenneth Liegner, MD, USA

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