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Next to my own book, the many articles and interviews and the movies of renowned doctors and scientists on the On Lyme Foundation’s website, there are other informative English websites, articles, documentaries and books about Lyme (or ME, MS, ALS and many other (mis)diagnoses that can actually be caused by Lyme infection) for both patients, interested friends and family as well as for professionals who try to uphold their Hippocratic oath.

I personally limit my professional work around these misunderstood illnesses to the social, legal and systemic corruption aspects of them (in other words: to non-medical information), so you may well find answers or directions to some of your questions in other places.

Websites (ranging from patients’ initiatives to create awareness, research journalism to expose fraud to political actions to challenge the status quo) 

What is Lyme? made by Lisa Hilton

Lyme Stats: very compelling images, made by Alison Childs

In the Crucible of Chronic Lyme Disease – Dr. Kenneth Liegner

ILADS: educational programs for health care professionals that meet international standards (IOM)

Virology blog; Trial by Error. David Tuller exposing the fraudulent PACE trial (ME)

Medical Abuse In ME Sufferers (MAIMES) – Dr. Sarah Myhill (UK) taking actions to report the PACE authors for research fraud

Hummingbirds’ Foundation for ME

MSIDS (UK)

Selected articles

ME/CFS Research Roundup: Brief highlights of biomedical research to date

The Lyme Wars: Meet The Players – Michael Conner

Lyme Disease Patients File Federal Antitrust Suit Against Infectious Disease Specialists & Health Insurers – Michael Conner

Ten points about suing the architects of Lyme policy—as a task force meets to review it – Mary Beth Pfeiffer

Where CDC Guidelines Fail, Leading Lyme Doctor Succeeds Dana Parish

Time for a better story – Huib (an article that ties together years of writing, interviews and research)

Books & reference reports

UPDATING ICD11 Borreliosis Diagnostic Codes: Edition One; report to the WHO and the Special Rapporteur for Health and Human Rights by the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes.

Cure Unknown – Pamela Weintraub

In the Crucible of Chronic Lyme Disease – Dr. Kenneth Linger:  the historical artifacts of the Lyme Wars which played out between 1988 and 2015. Scientific articles, abstracts, texts of scientific presentations, political orations, newspaper articles, case reports, extensive correspondence and photographs provide a rich tapestry of one of the most contentious upheavals in the history of medicine.

Gone in a heartbeat – Dr. Neil Spector

Believe me – Yolanda Hadid

Lab 257; The Disturbing Story of the Government’s Secret Germ Laboratory – Michael Carroll

Tick bites & MS – Bonnie Bennett

The Singing Forest: A Journey Through Lyme Disease – P.J. Langhoff

Lyme: The First Epidemic of Climate Change – Mary Beth Pfeiffer

Healing Lyme – Stephen Buhner

Why can’t I get better? & How can I get better? – Dr. Richard Horowitz

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners – Sharon E. Rainey

Skewed: Psychiatric Hegemony and the Manufacture of Mental Illness in Multiple Chemical Sensitivity, Gulf War Syndrome, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome – Martin J. Walker

Deadly Medicines and Organised Crime: How Big Pharma Has Corrupted Healthcare Peter Gotzsche

(French) La Verité sur la maladie du Lyme – Prof. Christian Perronne

Documentaries, TV shows or movies about Lyme, ME and similarly misunderstood illnesses 

Under Our Skin and Under Our Skin Emergence are both for sale at this website.

Fox 5 special ‘Lyme & Reason’ 

Lyme Life (2009)

The Monster Inside Me (2017)

Unrest (USA, about ME)

Voices from the Shadows (UK, about ME)

The Forgotten Plague (USA, 2016 about ME)

CFS and the CDC’s Failure to Respond: Primetime Live (USA, 1996)

My kid is not crazy (USA, about PANDAS)

Flatline the movie: will help you understand the current scientific paradigm

MUST SEE: explanation of the work of the Ad Hoc Committee to update the ICD codes for Lyme Borreliose of the WHO (below)

Disclaimer: this website does not provide any medical or other treatment advice. 

Huib Kraaijeveld

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"This book perfectly describes the plight of millions of patients, who suffer from chronic Lyme Disease in many countries all over the world."
Prof. Christian Perronne, France

"This book is a gift of truth and passion to humanity."
Mia Morales, Lyme patient, USA

"I received the book exactly on the day that I had decided to end my life. Huh?! Yep. I am 35 years old years and have been ill for 19 years. Now I know why: Lyme. Everyone should read this book!"
Miranda, the Netherlands

"This book offers a new practical, human centered way of dealing with health information. It is also ringing a bell for the new time how to work together towards health and thriving."
Kim Schimmler, MD, Germany

"This pioneer's work made it perfectly clear that, when "i" becomes "we", even illness becomes wellness."
Frans Vermeulen, journalist, the Netherlands

"In his crucial work on Lyme disease, dedicated social researcher Huib Kraaijeveld does not pretend to have all the answers, but guides us towards asking the upsetting and essential questions."
Prof. Cees Hamelink, professor Communication Sciences & Human Rights, the Netherlands

"This book reads like a thriller! It touched me deeply and I am sure it will change the course of history."
Linda Graanoogst, journalist, the Netherlands

"Well, I am wiping my eyes and blowing my nose, while tears stream down my face. I guess that is a good sign. You hit the nail on the head claiming that Lyme survivors need 'understanding'. I would like my own partner to read this book."
Anodea Judith, PhD & author, USA

"What an awakening perspective! Huib has successfully set a quantum leap for understanding and managing Lyme disease by common people."
John Wong, bestselling author, Singapore

"A true and unpretentious caretakers' guide to understand Lyme. This book will help you to completely understand what your friend is going through; regardless of the symptoms they have. I wish it had been written ten years ago, because it can actually save lives!"
Cheryl Versalle, Lyme patient, USA

"This book actually speaks to people beyond its target audience (caretakers of people with Lyme Disease): people like me who are not travel companions, but to whom it is not hard at all to have or develop understanding and compassion. This makes the reach of this book bigger, much bigger if you’d ask me. I am amazed a book can do all of this!"
Saskia Steur, business blogger, the Netherlands

"This book reads like an exciting novel, were it not that it concerns a deadly serious issue. It calls to contribute and take care of each other and our world. Read, weep, feel and act!"
Manfred van Doorn, leadership expert, the Netherlands

"A creative and very intelligent vision to dive even deeper into the world of Lyme, to look at yourself, other people, but also the entire world around you."
Friend of someone with Lyme

"The book indicates that Lyme disease can be a sexually transmitted disease. This will cause a tidal wave of awareness all over the world. Like the child in the old fairy tale The Emperor’s New Clothes, who exclaimed: 'But the emperor is wearing no clothes!'"
Ola Aniel Petterson, STD campaign leader, Sweden

"What a brilliant sociological work! I am sure it will have much impact."
Professor Neuropathy, Germany

"This book is a big eye opener. Both for friends of people with Lyme disease as well as for people with Lyme. Or for any other health issues, for that matter."
Martin Möhrke, medical research leader, Europe

"I cannot read any other book for more than two minutes now, in this hell called Lyme. Yet yours I cannot stop reading! I should have put it away hours ago to clean the house. But I simply cannot stop."
Ineke, wife of a husband with Lyme, the Netherlands

"This book is a delight to read. It offers soft candlelight and warm campfire camaraderie on an often dark and lonely journey."
Laura Bruno, medical intuitive Lyme expert, USA

"A very honest and yet witty way of helping those with Lyme disease. This book is full of ideas on how to help your friend with Lyme, as a travel companion on this crazy journey called 'Lyme'."
Lisa Hilton, Lyme advocate, USA

"Both the personal experiences as well as the author’s sharp mind turn this into an incredibly inspiring book that raises the consciousness of its readers."
Kara, ex Crohn disease patient, the Netherlands

"Tempting, informative and eminently readable! Shifting the Lyme Paradigm is an absolute eye-opener for those who are not aware of what the journey of Lyme disease entails."
Terri Mackinnon-Cross, CEO WorldLymeDay.com, Canada

"This book gave us the recognition and acknowledgment, which were like a band-aid on an open wound."
Sara, Lyme patient, Belgium

"Very insistently written based on intensive, almost existential, personal experiences, this book also gives a clear overview of all relevant information for both patients and caretakers."
Jan Eendebak, former chairman Lyme Foundation STZ, the Netherlands

"A relief to read, written by an expert who shares his dedication to his own path with us, and brilliantly written."
Muna, mother of a daughter with chronic Lyme, the Netherlands

"Playful, frightening, informative and encouraging."
Merel, kinesiologist, the Netherlands

"This book made me realize that there is too little known behind the phenomenon Lyme. In a challenging manner the author provides understanding of Lyme disease and suggestions for tackling this disease. I have 'prescribed' this book to many of my patients and mostly astonishment was soon followed by recognition. An absolute must for anyone with (still) unexplained symptoms or the people close around them."
Duco Kanij, osteopath, the Netherlands

"This book guides you through the labyrinth of Lyme swiftly, while it took us YEARS to even get this far."
Eugenie van der Linden, ex-Lyme patient and therapist, the Netherlands

"This book is an absolute 'must read' for everyone! For patients, for family and friends, and for doctors who can finally learn that Lyme is more than what is written in their textbooks and that they should not be able to dismiss "unexplained" complaints as psychological too quickly!"
Anne Fierlafijn, MD, Belgium

"Shifting the Paradigm of Lyme is not like any other book on Lyme that I have read. It appeals to a higher consciousness, and is analytical in an introspective way that is pleasant to read. This book is a friendly and warm reminder that no Lyme patient is ever alone."
Thomas Grier, biologist, USA

"This book show how caring friends can intervene to provide succor and alliance ‘against the odds’ of a potentially serious and very complex illness that is still poorly understood by mankind."
Kenneth Liegner, MD, USA

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