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Next to my own book, the many articles and interviews and the movies of renowned doctors and scientists on the On Lyme Foundation’s website, there are other informative English websites, articles, documentaries and books about Lyme (or ME, MS, ALS and many other (mis)diagnoses that can actually be caused by Lyme infection) for both patients, interested friends and family as well as for professionals who try to uphold their Hippocratic oath.

I personally limit my professional work around these misunderstood illnesses to the social, legal and systemic corruption aspects of them (in other words: to non-medical information), so you may well find answers or directions to some of your questions in other places.

Websites (ranging from patients’ initiatives to create awareness, research journalism to expose fraud to political actions to challenge the status quo) 

What is Lyme? made by Lisa Hilton

Lyme Stats: very compelling images, made by Alison Childs

In the Crucible of Chronic Lyme Disease – Dr. Kenneth Liegner

ILADS: educational programs for health care professionals that meet international standards (IOM)

Virology blog; Trial by Error. David Tuller exposing the fraudulent PACE trial (ME)

Medical Abuse In ME Sufferers (MAIMES) – Dr. Sarah Myhill (UK) taking actions to report the PACE authors for research fraud

Hummingbirds’ Foundation for ME

MSIDS (UK)

Selected articles

ME/CFS Research Roundup: Brief highlights of biomedical research to date

The Lyme Wars: Meet The Players – Michael Conner

Lyme Disease Patients File Federal Antitrust Suit Against Infectious Disease Specialists & Health Insurers – Michael Conner

Ten points about suing the architects of Lyme policy—as a task force meets to review it – Mary Beth Pfeiffer

Where CDC Guidelines Fail, Leading Lyme Doctor Succeeds Dana Parish

Time for a better story – Huib (an article that ties together years of writing, interviews and research)

Books & reference reports

UPDATING ICD11 Borreliosis Diagnostic Codes: Edition One; report to the WHO and the Special Rapporteur for Health and Human Rights by the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes.

Cure Unknown – Pamela Weintraub

In the Crucible of Chronic Lyme Disease – Dr. Kenneth Linger:  the historical artifacts of the Lyme Wars which played out between 1988 and 2015. Scientific articles, abstracts, texts of scientific presentations, political orations, newspaper articles, case reports, extensive correspondence and photographs provide a rich tapestry of one of the most contentious upheavals in the history of medicine.

Gone in a heartbeat – Dr. Neil Spector

Believe me – Yolanda Hadid

Lab 257; The Disturbing Story of the Government’s Secret Germ Laboratory – Michael Carroll

Tick bites & MS – Bonnie Bennett

The Singing Forest: A Journey Through Lyme Disease – P.J. Langhoff

Lyme: The First Epidemic of Climate Change – Mary Beth Pfeiffer

Healing Lyme – Stephen Buhner

Why can’t I get better? & How can I get better? – Dr. Richard Horowitz

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners – Sharon E. Rainey

Skewed: Psychiatric Hegemony and the Manufacture of Mental Illness in Multiple Chemical Sensitivity, Gulf War Syndrome, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome – Martin J. Walker

Deadly Medicines and Organised Crime: How Big Pharma Has Corrupted Healthcare Peter Gotzsche

(French) La Verité sur la maladie du Lyme – Prof. Christian Perronne

Documentaries, TV shows or movies about Lyme, ME and similarly misunderstood illnesses 

Under Our Skin and Under Our Skin Emergence are both for sale at this website.

Fox 5 special ‘Lyme & Reason’ 

Lyme Life (2009)

The Monster Inside Me (2017)

Unrest (USA, about ME)

Voices from the Shadows (UK, about ME)

The Forgotten Plague (USA, 2016 about ME)

CFS and the CDC’s Failure to Respond: Primetime Live (USA, 1996)

My kid is not crazy (USA, about PANDAS)

Flatline the movie: will help you understand the current scientific paradigm

MUST SEE: explanation of the work of the Ad Hoc Committee to update the ICD codes for Lyme Borreliose of the WHO (below)

Disclaimer: this website does not provide any medical or other treatment advice. 

Huib Kraaijeveld

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