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Why are children with Lyme taken away from their parents?

Written by Huib, published Tuesday January 24th, 2017

In the prior post about the events on Friday the thirteenth, when an ill girl with Lyme was forcibly taken away from her parents, I promised to try and explain what seems to happen in situations like this. Based on what grounds do Child Protection Services interfere with a family life, which was under strain already?

“To a man with a hamer, everything looks like a nail” Mark Twain

One would expect that if your children become ill, for example with a disease like cancer, that the medical system would acknowledge the disease, test for it and give the fitting diagnose. With Lyme disease, neither of these three assumptions are valid.

Parents are first simply trying to figure out why their children are in so much pain, who go blind, who are to tired to even leave their beds to go to the toilet, who keep having splitting headaches, who literally need to be spoon-fed. Expecting the medical profession to have both the knowledge and technology to find out what they’re dealing with.

Applied bureaucratic logic

On a daily basis I see their bewilderment of the response of that system, which can be summarised as “Lyme does not exist after two weeks” and the reversal of causality: “if the physical symptoms persist, the cause is psychiatric”. Doctors keep reading this nonsense, because the same Journal refused to publish a reponse by a Lyme Literate biologist.

So the ‘experts’ of CPS base their judgement on a Lyme test with less than 50% validity. Otherwise there would have been no need to spend two million euro on the development of a more reliable Lyme test (for acute infections; let alone older ones). Even my government admits this (although they fail to act on it).

If you put yourself in these parents’ shoes, it is not that hard to imagine why they leave these mainstream doctors as fast as they can, in search for more appropriate help. Many people check in Facebook groups, to find out where other people went to get proper testing and help. They will mostly go to a private doctor, who orders more valid tests from laboratories in other countries.

Nothing is covered, so for many people this is a both an emotionally as well as financially straining process. Which can take years. In the meanwhile their children are still unable to even leave their beds; let alone go to school.

A system running amok

This is the moment where the machinery of the system starts to turn in full gear. Because according to the Dutch Law minors have to go to school without valid excuse. Since “Lyme does not exist” after two weeks, being ill is not considered to be a valid reason for staying absent. And ever since the right for education has been turned into the obligation to get educated, that is punishable under Criminal Juvenile Law.

So either an official from the school, the mainstream medical system or the ministry of Education will file a report. In some cases it is even an anonymous report by someone in the family’s social network, who does not understand the Lyme Labyrinth and becomes worried. Then a process happens, in which Child Protection Services (CPS) always seems to accuse the parents upfront of ‘child abuse’, supported by a diagnose of the parents as suffering from ‘Münchhausen by Proxy’.

In the next blog post I will look into this very shady ‘diagnose’ of parents.

Huib Kraaijeveld

Author of “Shifting the Lyme Paradigm” and initiator of the On Lyme Foundation

drs. Huib Kraaijeveld

In: Blog Youth Care Lyme Human rights Nonsense Social

"This book perfectly describes the plight of millions of patients, who suffer from chronic Lyme Disease in many countries all over the world."
Prof. Christian Perronne, France

"This book is a gift of truth and passion to humanity."
Mia Morales, Lyme patient, USA

"I received the book exactly on the day that I had decided to end my life. Huh?! Yep. I am 35 years old years and have been ill for 19 years. Now I know why: Lyme. Everyone should read this book!"
Miranda, the Netherlands

"This book offers a new practical, human centered way of dealing with health information. It is also ringing a bell for the new time how to work together towards health and thriving."
Kim Schimmler, MD, Germany

"This pioneer's work made it perfectly clear that, when "i" becomes "we", even illness becomes wellness."
Frans Vermeulen, journalist, the Netherlands

"In his crucial work on Lyme disease, dedicated social researcher Huib Kraaijeveld does not pretend to have all the answers, but guides us towards asking the upsetting and essential questions."
Prof. Cees Hamelink, professor Communication Sciences & Human Rights, the Netherlands

"This book reads like a thriller! It touched me deeply and I am sure it will change the course of history."
Linda Graanoogst, journalist, the Netherlands

"Well, I am wiping my eyes and blowing my nose, while tears stream down my face. I guess that is a good sign. You hit the nail on the head claiming that Lyme survivors need 'understanding'. I would like my own partner to read this book."
Anodea Judith, PhD & author, USA

"What an awakening perspective! Huib has successfully set a quantum leap for understanding and managing Lyme disease by common people."
John Wong, bestselling author, Singapore

"A true and unpretentious caretakers' guide to understand Lyme. This book will help you to completely understand what your friend is going through; regardless of the symptoms they have. I wish it had been written ten years ago, because it can actually save lives!"
Cheryl Versalle, Lyme patient, USA

"This book actually speaks to people beyond its target audience (caretakers of people with Lyme Disease): people like me who are not travel companions, but to whom it is not hard at all to have or develop understanding and compassion. This makes the reach of this book bigger, much bigger if you’d ask me. I am amazed a book can do all of this!"
Saskia Steur, business blogger, the Netherlands

"This book reads like an exciting novel, were it not that it concerns a deadly serious issue. It calls to contribute and take care of each other and our world. Read, weep, feel and act!"
Manfred van Doorn, leadership expert, the Netherlands

"A creative and very intelligent vision to dive even deeper into the world of Lyme, to look at yourself, other people, but also the entire world around you."
Friend of someone with Lyme

"The book indicates that Lyme disease can be a sexually transmitted disease. This will cause a tidal wave of awareness all over the world. Like the child in the old fairy tale The Emperor’s New Clothes, who exclaimed: 'But the emperor is wearing no clothes!'"
Ola Aniel Petterson, STD campaign leader, Sweden

"What a brilliant sociological work! I am sure it will have much impact."
Professor Neuropathy, Germany

"This book is a big eye opener. Both for friends of people with Lyme disease as well as for people with Lyme. Or for any other health issues, for that matter."
Martin Möhrke, medical research leader, Europe

"I cannot read any other book for more than two minutes now, in this hell called Lyme. Yet yours I cannot stop reading! I should have put it away hours ago to clean the house. But I simply cannot stop."
Ineke, wife of a husband with Lyme, the Netherlands

"This book is a delight to read. It offers soft candlelight and warm campfire camaraderie on an often dark and lonely journey."
Laura Bruno, medical intuitive Lyme expert, USA

"A very honest and yet witty way of helping those with Lyme disease. This book is full of ideas on how to help your friend with Lyme, as a travel companion on this crazy journey called 'Lyme'."
Lisa Hilton, Lyme advocate, USA

"Both the personal experiences as well as the author’s sharp mind turn this into an incredibly inspiring book that raises the consciousness of its readers."
Kara, ex Crohn disease patient, the Netherlands

"Tempting, informative and eminently readable! Shifting the Lyme Paradigm is an absolute eye-opener for those who are not aware of what the journey of Lyme disease entails."
Terri Mackinnon-Cross, CEO WorldLymeDay.com, Canada

"This book gave us the recognition and acknowledgment, which were like a band-aid on an open wound."
Sara, Lyme patient, Belgium

"Very insistently written based on intensive, almost existential, personal experiences, this book also gives a clear overview of all relevant information for both patients and caretakers."
Jan Eendebak, former chairman Lyme Foundation STZ, the Netherlands

"A relief to read, written by an expert who shares his dedication to his own path with us, and brilliantly written."
Muna, mother of a daughter with chronic Lyme, the Netherlands

"Playful, frightening, informative and encouraging."
Merel, kinesiologist, the Netherlands

"This book made me realize that there is too little known behind the phenomenon Lyme. In a challenging manner the author provides understanding of Lyme disease and suggestions for tackling this disease. I have 'prescribed' this book to many of my patients and mostly astonishment was soon followed by recognition. An absolute must for anyone with (still) unexplained symptoms or the people close around them."
Duco Kanij, osteopath, the Netherlands

"This book guides you through the labyrinth of Lyme swiftly, while it took us YEARS to even get this far."
Eugenie van der Linden, ex-Lyme patient and therapist, the Netherlands

"This book is an absolute 'must read' for everyone! For patients, for family and friends, and for doctors who can finally learn that Lyme is more than what is written in their textbooks and that they should not be able to dismiss "unexplained" complaints as psychological too quickly!"
Anne Fierlafijn, MD, Belgium

"Shifting the Paradigm of Lyme is not like any other book on Lyme that I have read. It appeals to a higher consciousness, and is analytical in an introspective way that is pleasant to read. This book is a friendly and warm reminder that no Lyme patient is ever alone."
Thomas Grier, biologist, USA

"This book show how caring friends can intervene to provide succor and alliance ‘against the odds’ of a potentially serious and very complex illness that is still poorly understood by mankind."
Kenneth Liegner, MD, USA

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